Patient and Public Involvement

NHS Policy Documents and Organisations

For an overview and recent update, see Policy document on patient and public involvement dated 1 July 2008.

The Local Government and Public Involvement in Health Act, 2007 introduced a number of measures relating to local government as well as involvement of local communities. These include the establishment of Local Involvement Networks (LINks), which replaced Patients’ Forums and the Commission for Patient and Public Involvement in Health in 2008. The bill also clarifies and strengthens the existing duty on NHS bodies to involve and consult patients and the public in the planning and provision of services.

Local Involvement Networks. LINks 'aim to give citizens a stronger voice in how their health and social care services are delivered. Run by local individuals and groups and independently supported - the role of LINks is to find out what people want, monitor local services and to use their powers to them account'.

House of Commons Health Committee Patient and Public Involvement in the NHS: Third Report of Session 2006–07 HC 278-I Published on 20 April 2007.

Patient and Public Involvement Specialist Library is part of the National Libraries for Health.

NICE Patient and Public Involvement Programme. The PPIP currently works with NICE to develop opportunities for involving patients, carers and members of the public across NICE's work programmes.

Scottish Government Patient Focus and Public Involvement.

Earlier legislation and governance measures include:

Department of Health (1999) Patient and Public Involvement in the New NHS. Department of Health: Wetherby.

Department of Health (2001) Building a safer NHS for patients: implementing an organisation with a memory. London: Department of Health

The NHS Plan (2000) and Section 11 of The Health and Social Care Act 2001 made specific provision for a public voice in the NHS through the establishment of:

Patient Advocate and Liaison Service (PALS) From 2002, every Trust and PCT should have one of these groups, with staff managed by the Trust, access to the Chief Executive Officer, and responsibilities to senior management.

Patient and Public Involvement Fora. These were established on 1 December 2003, with one forum in every NHS trust, NHS Foundation trust and PCT in England. However, they were abolished on 31 March 2008 and replaced by LINks (see above).

Key Publications

Patient and public involvement in health: The evidence for policy implementation. Findings from a research programme entitled Health in Partnership.

British Medical Journal special theme issue on patient issues, 14 June 2003

Chambers R (2000) Involving patients and the public Oxford: Radcliffe Medical Press

Clinical Governance Bulletin, special issue on patient experience Vol 1, no. 1 July 2000

Coulter A (2003) The Autonomous Patient: ending paternalism in medical care London: The Nuffield Trust

Coulter A, Entwistle V, Gilbert D (1999) Sharing decisions with patients: is the information good enough? British Medical Journal 318: 318-22.

Duman M (2003) Producing Patient Information London: the King's Fund. (This is a revised second edition of the earlier book from the King's Fund, Practicalities of Producing Patient Information (PoPPi), published in 2000).

Kelson M (2001) Patient involvement in Clinical Governance in: Lugon M. Secker-Walker J (eds) (2001) Advancing Clinical Governance London: Royal Society of Medicine Press.

Rigge M (2000) What are patients looking for? in Van Zwanenberg T, Harrison J (eds) (2000) Clinical Governance in primary Care Abingdon: Radcliffe Medical Press.

Taylor M (2000) Patient care (empowerment): a local view British Medical Journal 320: 1663-4

Tozer M (2000) Learning from patient experience: evaluating service quality from the perspective of patients and carers Clinical Governance Bulletin 1: 3-4

Wensing M, Elwyn G (2003) Improving the quality of health care: methods for incorporating patients' views in health care British Medical Journal 326: 877-879